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Author Archives: kscottmullins
T+49: Week 1 of Outpatient and the Counts Keep Rising!
Mom’s white counts yesterday were 2,660! The normal white count range begins at 4000–the counts are nearly doubling every day at this point. They can slow, and they can go down, but at the moment, things with that are good. … Continue reading
Posted in Uncategorized
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T+43: Released! to the Hackerman-Palz Family Pavillion
51 LONG days after entering Johns Hopkins, my Mom has been released to IPOP (outpatient care). For at least the next two weeks she has to be at the IPOP clinic daily, so they are staying at the Hackerman house, … Continue reading
Posted in Uncategorized
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T+41: The One Where a Rash Has Me Jumping for Joy!
It worked. IT WORKED!!! This morning there were 160 white cells, over 100 neutrophils and my Mom broke out in a red, itchy rash all over her body. YES!!! She has Graft vs Host! It WORKED!!! My marrow is in … Continue reading
T+36: “Faith is the substance of things hoped for, the evidence of things not seen”
Today there are 71 white blood cells! And at the advice of the staff, a little boy got to see his Grammy. We wait, we give thanks, we continue to cry out the desires of our heart.
T+35: Where there was sorrow at night, but joy came in the morning
Yesterday the doctors came into Mom’s room to report that the transplant didn’t take. We were devastated. They said they were awaiting the results of further testing to come up with “Plan B”. It was the worst day ever. This … Continue reading
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T+30: Where some things are better, and some things remain the same
After 3 weeks of not being able to go in, I finally got to see Mom today! Although we are still nowhere with her counts, I know a few things are better, and for these we are grateful: The mucositis … Continue reading
Posted in June 2012
2 Comments
T+25 and we’ve got…nothing.
I’ve been hesitant to write this post, because I’ve been hoping I’d have something different to say. Unfortunately, I don’t. We’ve got no counts yet to speak of. The first glorious day there were 15 white blood cells. Then they … Continue reading
Posted in May 2012, Uncategorized
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T+17: Where Sasha Baron Cohen appears with a van, and Dad finally snags a recliner
Along with all the other nasty side effects of Mom’s drug cocktail, let’s add another, wild and wooly one to the mix: extremely vivid and bizarre dreams. Yesterday she had one in which Sasha Baron Cohen appeared in her room, … Continue reading
Posted in May 2012, Uncategorized
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The one where Celcept causes her to throw up…a lot
Mom’s sick as a dog, but she’s angry about it, and call me crazy, I see something positive in that (don’t kill me, Mom). Her current nemesis is the immunosuppressive drug Celcept. On one hand, it’s keeping her alive and … Continue reading
Posted in May 2012, Uncategorized
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Hope is the Thing With Feathers
No shouting. No High-Fives, barely breathe whatever emotion you feel upon reading my next words. No congratulations, nothing loud. More prayers, more wishes, maybe–that’s all this moment will allow for. Mom’s white cell count was down to zero. This evening, … Continue reading
Posted in May 2012, Uncategorized
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Kathy's Transplant Journal 