Author Archives: kscottmullins

T+175: Some Bumps in the Road–a Message from Kathy

Hi Everybody, Some of you may know that I have had a rough few weeks, a lot of good days but more increasingly bad days.  It involved a lot of eating, tasting and GI issues, without going into all the … Continue reading

Posted in Uncategorized | 6 Comments

Day T+96: Just Sitting Here Watching the Wheels Go Round and Round

I’ve heard from a lot of people lately asking for an update on Mom, and I apologize for letting some time go by.  Let me assure everyone, it’s all good. Since day T+66 we’ve all been learning to wake up … Continue reading

Posted in August 2012 | Leave a comment

T+66: Rejoice Evermore!

One year ago Mom, Dad and I sat down in Dr. Smith’s office and heard the most frightening news any family can hear.  The world was suddenly a grim and unfamiliar place and we began to live in a state … Continue reading

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T+49: Week 1 of Outpatient and the Counts Keep Rising!

Mom’s white counts yesterday were 2,660!  The normal white count range begins at 4000–the counts are nearly doubling every day at this point.  They can slow, and they can go down, but at the moment, things with that are good. … Continue reading

Posted in Uncategorized | 2 Comments

T+43: Released! to the Hackerman-Palz Family Pavillion

51 LONG days after entering Johns Hopkins, my Mom has been released to IPOP (outpatient care).  For at least the next two weeks she has to be at the IPOP clinic daily, so they are staying at the Hackerman house, … Continue reading

Posted in Uncategorized | 3 Comments

T+41: The One Where a Rash Has Me Jumping for Joy!

It worked.  IT WORKED!!! This morning there were 160 white cells, over 100 neutrophils and my Mom broke out in a red, itchy rash all over her body.  YES!!!  She has Graft vs Host!  It WORKED!!!   My marrow is in … Continue reading

Posted in June 2012 | Tagged , , | 3 Comments

T+36: “Faith is the substance of things hoped for, the evidence of things not seen”

Today there are 71 white blood cells! And at the advice of the staff, a little boy got to see his Grammy. We wait, we give thanks, we continue to cry out the desires of our heart.

Posted in June 2012 | Tagged | 2 Comments